Jared & Amanda Abuhl Family | Jan, 2022

MONTHLY UPDATE

 

Jared & Amanda Abuhl Family

 

We are a family of seven—soon we will be a family of eight. We are on an unexpected path that started almost five years ago with the birth of our fifth child.

Evangeline was born several weeks early; that was our only notice that our lives were about to change forever. Evangeline has a mutation on her KCNT1 gene that causes unstoppable seizures. In 2017, there were only four known cases of this mutation in the world.

Life turned upside-down. Faith, family warmth, and love sustained us. After the first year, things stabilized, and we decided to take our now-two-year-old off of hospice and work to make her life as meaningful as possible. She still has fifty seizures a day, but now we know of 60 other cases in the US and 250 worldwide. We have a small community!

People do not get to choose the hardest parts of their life—only their way forward. By God’s grace, our family understands that the world is broken and needs us to serve and love each other. This is not the end of the story. As a result of our life-changing encounter with an ultra-rare genetic coding, we are going to adopt! There is a little girl in Bulgaria who has the same KCNT1 mutation as Evangeline. We have the experience and the medical team in place to deal with this hard medical condition, so we are looking forward to bringing another child who is medically fragile into our family.

Life is hard, but we are resolved to live.

 

Room to Bloom Logo

Room to Bloom’s mission is to promote the beauty of adoption and to ascribe dignity to people with Down syndrome and other special needs. We do this by partnering with organizations that are dedicated to orphan care and adoption advocacy, strengthening families who have children with special needs, and giving a voice to the vulnerable.

RELATED

From Astroturf to Carolina Dirt

From Astroturf to Carolina Dirt

Jason Brown and the Story of First Fruits Farm   words by: Nic Stoltzfus   _______________ Honor the Lord with your wealth, with the firstfruits of all your crops; then your barns will be filled to overflowing, and your vats will brim over with new wine. ~...

Sowing Seeds

Sowing Seeds

Roots + Wings with Rory Feek   Last night, Indiana and I spent the evening in the garden weeding, watering the many rows of vegetables, and checking on how the seeds we’ve sowed this spring are doing. The broccoli and cabbage that were abundant a month ago are...

Honest Horse Keeping

Honest Horse Keeping

Confessions of a Steward with Joel Salatin   I don't own a horse. I don’t keep a horse. That’s precisely why I’m qualified to address the issue—I don’t have preconceived notions about keeping horses. I have thought and yakked about it quite a bit, though, because...